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Jeremy Wickins's avatar

Thanks, Helen. Like you, in principle, I support people being able to make a decision, under certain limited circumstances, to choose to die in the most effective and peaceful way possible, with the assistance of doctors and pharmacists. I have held this view for years. However, I see the legislature and judiciary of the UK as being far closer to Canada, Belgium and the Netherlands than to Australia or Switzerland. From my point of view, I see - as a result of the very poor procedure you outline perfectly - the "slippery slope" being not a bug, but a feature. I also have a slightly modified version of "better that ten guilty people go free than one innocent be punished" pushing to the front of my mind, to the effect of "better ten people who want to die are denied than one who wishes to live feel they should die". I don't think this is either virtue ethics, nor Consequentialism, but I could be wrong. A recent report showing that husbands kill their terminally ill wives at a far higher rate than the other way around leaves me even more nervous about the proposed legislation. This is major legislation, and needs to be approached differently than it is.

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John Lish's avatar

Having looked through the bill, it is a dog's dinner tbh. So I am more annoyed by the process than the principle. I have no issues with the Swiss model which is more honest than most around the world. However Leadbeater's private members bill is a dishonest bill of goods and doesn't understand the legal framework it is meant to be operating under.

For example, with the Mental Capacity Act and the Gillick judgment, the NHS assumes that 16 year olds have capacity to consent to medical procedures. The bill reports to be for adults but that won't survive contact with the MCA/Gillick. My expectation is that a 13yo with capacity and a terminal diagnosis could successfully get court approval to end their life.

I am not sure whether it is dishonesty or ignorance but it doesn't fill me with confidence.

I fully agree with you on UK state capacity to deliver this is very weak especially as we have both a social care crisis and a palliative system dependant on charity. That's going to push the UK towards Canadian type statistics where the poorest percentiles are disproportionately represented.

I also don't like the 6 months qualifier threshold. Not only because only one in three deaths will fall within that timeframe but also others can experience unbearable suffering yet be a long way away from their death. The methodology is flawed and itself cruel. If we are to have "assisted dying" then we need a more sophisticated approach that respects people's choices.

If we are to have this in England and Wales then I would suggest that a) the initial period would only see private providers b) NICE (National Institute for Clinical Excellence) run a longitudinal study on those private providers c) a sunset clause on the initial act. Parliament can debate the findings of the longitudinal study and decide whether to extend the policy into the NHS, keep the current arrangement or let the practice end. It would need at least ten years for the study to be meaningful so perhaps a sunset clause of twelve years would be appropriate?

I don't particularly have confidence in Parliament, government, NHS or other parts of the public estate to get this right sadly.

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